I always say: “Lipedema is so much more than just a physical condition” – it’s an enormous burden that can greatly impact self-image and self-esteem. Women with lipedema often feel uncomfortable in their own bodies and wish they could change that. The fact that lipedema is resistant to diet and exercise makes it even worse.

The societal beauty ideal, which often favors slim, symmetrical bodies, puts even more pressure on us. Shopping alone constantly reminds us that we don’t fit into the clothes we’d like to wear and buy. Pants are too tight in the areas affected by lipedema, and even the arms (which are often affected) make buying clothes difficult.

There are also well-meaning comments from friends, relatives, and outsiders who don’t know any better and say, “Oh, it doesn’t look that bad,” or “That really doesn’t go away?” While they mean well, these comments can be very distressing.

All these daily experiences weigh on us and can significantly damage our self-esteem. We develop shame, avoid social contact, and don’t go to the pool to avoid facing uncomfortable situations and feelings.

This often leads to psychological problems, adding to the burden of living with lipedema.

Even though living with lipedema is often difficult, there are ways to boost self-confidence and self-esteem, thereby also improving mental health.

Here are some tips that have helped me:

Learning Self-Acceptance: The first step to strengthening self-esteem is accepting your body. Accepting that you have lipedema and that it’s part of you now. This means learning to embrace your body as it is and focusing more on abundance than lack. For me, the thought that my legs, despite having lipedema, allow me to play with my child, has helped a lot. Gratitude then outweighs the negative, and you feel different immediately. Of course, this took practice. Start small, by focusing on what you like about yourself, and build on that.

You can practice this every day and find new things about yourself to appreciate – despite lipedema.

Connecting with Others Affected: Connecting with other women with lipedema can be incredibly supportive. In my support group or online communities, you find understanding, advice, and valuable tips to better cope with the condition. The feeling of not being alone strengthens self-confidence!

If you’re interested in my support group “Lipedema Community” and would like to connect with others affected, check out my Instagram profile (Taliamenzel) under the “SHG” highlight and send me a private message.

Psychological Support: Professional help from a therapist can help you cope with the psychological and physical strains of lipedema (you don’t have to do this alone), and it will strengthen your self-confidence.

Self-Care: Regular exercise that you enjoy and that feels good can not only alleviate the physical symptoms of lipedema but also improve your mental well-being. I love yoga and Pilates, but swimming or gentle stretching exercises can also be particularly relaxing and good for your body and mind. Don’t forget to take time for yourself; this often gets neglected in daily life. Book a massage or have a cozy evening with your favorite series.

What would you like to do for yourself today??

We are more than just our lipedema!

All the best to you,

Talia